The Bunker

Daily: Charlotte Raven on Life with Huntington’s Disease

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Episode notes

Charlotte Raven was in her mid-30s when she discovered her father was suffering from Huntington’s disease. For her and her family, life would never be the same again. Joined by her doctor Ed Wild, Charlotte talks to Nick Cohen about her memoir Patient 1: Forgetting and Finding Myself, a candid account of her coming to terms with an inherited neurodegenerative disease, how it changed her as a person, and the hope that one day we can eliminate it altogether.

• “Everyone in my family insulated me from the brutal reality of Huntington’s”- Charlotte Raven
• “I felt like facing this head on would minimise it’s impact later” - Charlotte Raven
• “I was exploited by a culture that wanted me to be a controversialist” - Charlotte Raven
• “Huntington’s comes on so slowly the first symptoms are often unnoticed” - Ed Wild
• “My children have become a recognisable anchor for me” - Charlotte Raven

Presented by Nick Cohen. Produced by Andrew Harrison. Assistant producers: Jacob Archbold and Jelena Sofronijevic. Music by Kenny Dickinson. Audio production by Alex Rees. THE BUNKER is a Podmasters Production

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