Epilepsy Sparks Insights
DANCEing: Beyond Seizures: Supporting Caregivers! - Simona Giorgi, Dravet Foundation EU, Spain
Published: 13 March 2025 at 01:00 UTC
Listen on
Episode notes
Dr. Simona Giorgi from Dravet Syndrome Foundation Spain shares their preclinical and clinical studies, epidemiological research, and their development of tools to support caregivers and people affected by Dravet! Highlighted are the needs for greater awareness among healthcare professionals about the capabilities of patient advocacy groups and the invaluable psychological support they can provide to families.
------------------------------------------
🔗 European Dravet Syndrome Conference 2025
https://www.epilepsysparks.com/conferences/european-dravet-syndrome-conference-madrid
------------------------------------------
🔗 Website & more about Simona: 👇🏻
-----------------------------------------
Chapters 📖
00:00 Intro
00:00 Meet Simona & Dravet Syndrome Foundation Spain
02:48 Research Initiatives and Collaborations
06:07 Understanding Epidemiological Studies
08:58 Tools for Caregivers and Patients
11:57 Awareness and Support for Families
15:04 Future Directions
00:00 Conclusion & Thanks
-----------------------------------------
Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
------------------------------------------
📲 Join us on social media!
- LinkedIn https://www.linkedin.com/company/epilepsy-sparks
- Bluesky https://bsky.app/profile/epilepsysparks.bsky.social
- Instagram https://www.instagram.com/epilepsysparks
- Facebook https://www.facebook.com/epilepsysparks
- Threads https://www.threads.net/@epilepsysparks
- TikTok https://www.tiktok.com/@epilepsysparks
- YouTube https://www.youtube.com/@EpilepsySparksInsights
#rareepilepsy #Dravet #epidemiology #neuropsychiatric #carer #caregiver