Epilepsy Sparks Insights
By Torie Robinson
Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson.
**NOT FOR CLINICAL OR PATIENT DECISION-MAKING*
Visit www.torierobinson.com & www.epilepsysparks.com.
**NOT FOR CLINICAL OR PATIENT DECISION-MAKING*
Visit www.torierobinson.com & www.epilepsysparks.com.
Latest episode
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DANCEing: Beyond Seizures: Supporting Caregivers! - Simona Giorgi, Dravet Foundation EU, Spain
Dr. Simona Giorgi from Dravet Syndrome Foundation Spain shares their preclinical and clinical studies, epidemiological research, and their development of tools to support caregivers and people affected by Dravet! Highlighted are the needs for greater… -
Epilepsy: Astrocytes and Their Relationship With Neurons - Tom Jensen
Tom Jenson, a postdoc researcher at UCL Institute of Neurology, chats about his research on astrocytes and their role in neuronal communication. He explains the differences between astrocytes and neurons, the challenges of using human brain tissue fo… -
Quality of Life: With Epilepsy & Intellectual Disability
Adults with an intellectual disability and an epilepsy have many of the same needs as those without the former - but things can take longer to figure out - hence, care and patience are crucial from clinicians! Neuropsychiatrist Mike Kerr shares how w… -
Epilepsy: Care For People Who Also Have Intellectual Disability - Mike Kerr
Neuropsychiatrist Mike Kerr talks about the intersection of epilepsy and Intellectual Disability, the complexities of communication, the need for tailored communication strategies, the needs of individuals and caregivers, and the importance of buildi… -
Epilepsy - Preventing Seizures After Traumatic Brain Injury - Tobias Engel
Tobias Engel talks about potentially preventing seizures and epilepsy caused by Traumatic Brain Injury (TBI)! He discusses his study into the P2X7 receptor's role in TBI and its potential to reduce inflammation, seizures, epilepsy, neurodegeneration,… -
Epilepsy: Making Diagnoses More Precise! - Mastaneh Torkamani Azar
Post-doc researcher Mastaneh Torkamani-Azar discusses her research on drug-resistant epilepsy, focusing on the innovative techniques being developed to improve diagnosis and treatment. The conversation covers the challenges of drug resistance in epil… -
Epilepsy: The Brain-Mind Connection - Leszek Kaczmarek
Neurobiologist Leszek Kaczmarek discusses his extensive research in molecular neurobiology, particularly focusing on the role of the MMP-9 protein in learning, memory, and epilepsy! He explains how MMP-9 is linked to synaptic plasticity and epilepsy,… -
Communication Barriers in Epilepsy Research - Georgia Cook
Research Fellow Georgia Cook explains the challenges of and positive impacts of positive, effective communication upon patient and family Quality of Life, the importance of qualitative research engagement and how it compliments quantitative research,… -
Being Involved in Epilepsy Research at iNeuron! - Torie Robinson
Paediatric neurologist, scientist, and PPI Lead Julia Jacobs and Torie Robinson discuss the role of individuals with Lived Experience in research, particularly in the context of the iNeuron project, which focuses on epilepsy, stroke, and dementia. Th… -
How Do We Understand The Researchers - And the Patients?! - Georgia Cook
Research Fellow Georgia Cook chats about the importance of effective communication between researchers and lay-people in epilepsy research - using the CASTLE study as a great example! She speaks of how the way that patients and families think and pri…