Dementia Research Charity Chatathon

How is research making a visit to the hospital better for people living with dementia

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Episode notes

On the 7th September 2020, ⁠⁠⁠Adam Smith⁠⁠⁠ hosted the Dementia Research Chatathon LIVE - to share information on the wide variety of research taking place across the world, and the raise money for Alzheimer's Research UK. Please continue to donate and help Adam meet his £5,000 target - details can be found at ⁠⁠⁠http://www.chatathon.uk⁠⁠⁠.

In a way that everyone can understand, this video features Adam talking with:

Dr Courtney Genge, Program Adviser for the federal ageing research program, National Research Council Canada I have spent the last few years researching Dementia in the emergency department using a human factors framework to understand the safety implications of receiving care in this setting. My work is grounded in participatory research approaches and utilises co-production and collaborative research partnerships with people living with dementia - @courtneyjshaw1 ⁠ Dr Emily Jones, Senior Matron for Medicine at Portsmouth Hospital University NHS Trust. In my clinical academic doctorate I explored how the work system of an acute hospital impacted nursing staff's capacity to care for people with dementia. The findings indicated that nurses are driven by the priorities of the organisation, which unfortunately is not high quality dementia care but patient flow and patient safety initiatives. Nurses struggle with feelings of guilt and fear with regards to their work, guilt for not providing good care but fear of not completing the task "visible" to the organisation. The research raises questions about nursing autonomy and decision making, particularly with regards to the organisation of their work and also how we make dementia care tangible. @emilyjonesmed

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