Be Powerful with Liz & Lee

152. Turning Your Pain Into Purpose While Still Honoring Your Needs with Erin Santos-Primis

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Episode notes

In this heartfelt episode, we’re joined by Erin Santos-Primis, founder of the Isabella Santos Foundation, to share her moving journey following her daughter Isabella's stage 4 neuroblastoma diagnosis at just two and a half years old. Erin discusses the challenges of navigating the healthcare system, the emotional toll of pediatric cancer, and the importance of community support and early diagnosis. She also opens up about her personal transformation, balancing life as a single mother, and using her voice to drive systemic change and advocate for personalized care. 

 

Liz is honored to be an emcee with Maggie Gavigan at this year’s ISF luncheon on Tuesday, October 29th at Carmel Country Club 9:00-11:30 am. Please join us at the Mad Hatter’s Tea Party, hosted by the Isabella Santos Foundation to learn more about and support rare pediatric cancer. 

Learn more and register for one of the three event dates at https://isabellasantosfoundation.org/brunchclub/. 

 

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Some key takeaways from this episode include:

  • Advocate for yourself and your kids. You never have to accept the first diagnosis, the first treatment plan, or the first option for anything. Get second, third, or fourth opinions and stand firm if your gut is telling you the option presented isn’t good enough.

  • Turning your pain into purpose is a beautiful thing, but it doesn’t have to become your entire identity. You are not just a mom, a partner, etc., you’re are your own individual person with needs and wants. Make sure you protect your individuality.

  • There are so many great organizations providing things like gas cards to families navigating cancer treatments, but the Isabella Santos Foundation focuses on funding research and clinical trials to make it so fewer families need those resources to begin with. You can learn more and donate at https://isabellasantosfoundation.org/donate. 

 

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Be Powerful with Liz & Lee is focused on helping you find your inner power and for us to share our thoughts on society, culture, and current events. As the team behind Hilliard Studio Method in Charlotte, North Carolina, we love all things wellness and will also share info on how to live your healthiest life mentally, physically, and emotionally.

 

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