Signalise: a Dazzle4Rare Podcast
EP37: Four Paediatric Holiday Cheer Stories and UHC Day 12th December
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Episode notes
In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope. She also shares International Universal Health Coverage Day brought to our community's attention by Dr. Eleonora Passeri of Rare Special Powers (IT).
1. International Universal Health Coverage Day: https://www.un.org/en/observances/universal-health-coverage-day
2. Emma's Dravet Syndrome Story:
https://www.cbsnews.com/philadelphia/news/dravet-syndrome-rare-disease-emma-watson
3. George's Lung Condition: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1403838
4. George's Christmas Celebration:
https://www.coventrytelegraph.net/news/real-life/rugby-boys-first-christmas-without-28203691
5. Poppy's Musical Tribute: https://www.thetelegraphandargus.co.uk/news/23958762.bradford-teen-re-releases-song-memory-young-relatives
6. Buy a Copy of the Song: https://beyondrecords.uk/
7. Cure 4 The Kids' Challenge:
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