Signalise: a Dazzle4Rare Podcast
By Kimberly Thomas-Tague
The Dazzle4Rare event and Signalise podcast amplify the voices of rare disease and associated communities by sharing their stories, new, events, and more. Working together, we have strength in numbers, amplifying our critical messages.
We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.
We feature guests and discuss relevant topics for rare disease patients, caregivers, and those in the URCIID community.
Latest episode
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EP39 Rare and Relevant News Stories of 2023 TL;DR and Update
Welcome to the first 2024 episode of Signalise: a Dazzle4Rare podcast! Remember, we're now airing on Fridays. In this episode, we reflect on 2023's significant rare disease developments and look forward to more progress in 2024. Most Read Rare Dis… -
Bonus: 2024 Podcast Schedule Change
A quick "bonus" episode to drop to let you know that we'll be making some scheduling changes and 2024 will hopefully fingers crossed be a year of positive changes. But first, a big thanks to our faithful listeners for tuning in today and to this bi-m… -
EP37: Four Paediatric Holiday Cheer Stories and UHC Day 12th December
In this festive episode, Kimberly shares a little holiday spirit by with heart-warming stories of children with rare conditions and their families finding hope. She also shares International Universal Health Coverage Day brought to our community's at… -
EP37: Mid-November Rare and Relevant TL;DR and an Update on ”Take Care of Maya”
Please note there are audio issues with this episode. I'll be working to upload an improved version later on release date. In this, Kimberly shares a range of awareness events including International Epilepsy Awareness Day and World Pneumonia Day. … -
EP35: November TL;DR Feat. a Message for Menkes Awareness
In this episode, Kimberly shares several important awareness events happening in November, such as International Epilepsy Awareness Month, National CRPS Awareness Month, and Colour the World Orange Day for Complex Regional Pain Syndrome. It also high… -
EP34: 2023 Halloween Special: Reel Struggles On and Off Screen for Rare Heros in Media, Feat. Original Spooky Jokes by Kimberly
Hold on to your pointy hats! In this episode, we share many more celebrities with rare or less commonly understood conditions in sci-fi and horror media. The discussion begins with Bruce Willis, who has recently been diagnosed with a rare form of dem… -
EP33: Kimberly Speedruns an October Rare and Relevant TL;DR Plus Network Good News
There have been some disruptions due to, as you can imagine, illness. It's that time of year and as much as we'd all love to think that Covid is no longer a disrupter in our lives, it still very much is. Please come back later today for links to the … -
EP32: September Rare and Relevant TL;DR and Returning Guest Daniel De Fabio on Global Genes Rare Week 2023
In this episode of Signalise, we dive into the world of rare and relevant events. From September's Mitochondrial Disease Awareness Month to October's myriad of awareness campaigns, we've got your calendar covered. But that's not all! Stay tuned … -
EP31: September Awareness Days, NORD Designates New Rare Disease Center, and Listener Voicemails
In this rare and relevant episode Kimberly delves into various awareness days and months in September. We also talk about upcoming webinars and conferences, share industry resources, and highlight the inspiring "Life After Diagnosis Day" follow-up av… -
EP30: September’s Awareness Dates, Community Clips, and Global TL;DR News feat. Kerry Wong & Lee Reavey
In this episode, Kimberly discusses various awareness months and initiatives in the global rare community, beginning with a recap of International Ataxia Awareness Day and a message from Alan Thomas, a rare disease advocate, emphasizing the importan…
