Signalise: a Dazzle4Rare Podcast
EP31: September Awareness Days, NORD Designates New Rare Disease Center, and Listener Voicemails
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Episode notes
In this rare and relevant episode Kimberly delves into various awareness days and months in September. We also talk about upcoming webinars and conferences, share industry resources, and highlight the inspiring "Life After Diagnosis Day" follow-up available on The Disorder Channel.
Stay tuned for voicemails from our listeners, news about Weill Cornell Medicine and New York-Presbyterian Weill Cornell Medical Center, and San Diego-based Crinetics Pharmaceuticals' promising results in the development of an oral medication for acromegaly. So much to hear in one episode!
Links ⬇️
http://dazzle4rare.net/awareness_days](http://dazzle4rare.net/awareness_days
https://www.hopeforhh.org/get-involved/](https://www.hopeforhh.org/get-involved
https://rarediseases.org/rare-diseases/usher-syndrom](https://rarediseases.org/rare-diseases/usher-syndrome
https://www.childrenshospital.org/conditions/microvillus-inclusion-disease
https://rarediseases.org/event/nfed-advocacy-day/](https://rarediseases.org/event/nfed-advocacy-day
https://globalgenes.org/event/rare-health-equity-forum/](https://globalgenes.org/event/rare-health-equity-forum
https://www.hlth.com/2023event
https://mmpharmasciences.pathfactory.com/l/integrated-perspectives
Reach Daniel De Fabio at [email protected]
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